Owen was born on January 28, 2008 with a severe heart defect, Hypoplastic Left Heart Syndrome. The left side of his heart was underdeveloped and without corrective surgery shortly after his birth... he would die. The corrective surgery is performed in three stages... the Norwood (birth) , the Glenn (3-9mo) and the Fontan (2-4yrs).
On Owen's one week birthday, he underwent his first open heart surgery, the Norwood. There are no words to describe the heartache of sending our newborn son to the operating room, not knowing if we'd ever hold him again. We paced the waiting room at Phoenix Children's Hospital for 7 LONG hours waiting to hear that he was okay.
Wednesday, March 31, 2010
Friday, March 26, 2010
Welcome to Family Heart Book!
About the Family Heart Book...
Family Heart Book was designed to give support to all the families that have had a child born with a Congenital Heart Defect. Having a child go through major heart surgery among other complications really takes a toll on your family and it's so important to have support as well as an idea of what's to come, etc. As many of you know the best support are the ones who've been there and who know exactly what you are going through, and the Heart Families are the best--there's no doubt about it!! Hopefully this book will give you that!
This site was developed to share our Heart Babies with each other and we are hoping that you would like to be a part of it! Our goal is to get as many families involved and produce a book that will not only be a keepsake for you, but to also give strength & hope to the new families enduring this amazing yet very stressful time in their lives. This book will feature your childs journey through your eyes. It will include pictures of each child & their families as well as honor those doctors, nurses & hospitals that we spent most, if not all of our time when they were born, in one of my favorite sections, Heart Heroes. For the new families that are to come, we will be producing a new book each year so that we can be sure to have every one included!
If you are interested in being a part of our book, please contact Ashley Majorek at firstname.lastname@example.org to get all the details. I look forward to hearing from you!!